Introduction to Blog

Updated: Sep 16, 2021

This introduction is meant to provide an overview of my Blog Résilience. Having worked as a Paramedic and suffering from the rare Fabry disease, I give you a quick view of the overall content of the blog as well as a glimpse of what I have become in the wake of many hardships. I welcome you into my intricate world, full of emotions and reflections.


Introduction

Hello everyone, I welcome you to my blog Résilience par Michel Sévigny Bélair. My name is Michel and I suffer from a rare genetic disorder known as Fabry disease which has led me to face many challenges over the years such as two kidney transplants. With Résilience, I invite you to delve into the heart of life through a rare genetic disease while discovering my vision and perspective on life in general.


A few clarifications and some information!

I am not an expert, and I don’t pretend to hold the answers to anything. However, what I am offering you is 40 years of life experience and not only what it represents living with an genetic disorder, but also what is represents to go through all these challenges having been a healthcare worker. The experience brought by both sides of the coin (patient/healthcare worker) is not trivial, in my opinion, and I hope that you can benefit from my experience.

I also touch on various topics from pain and suffering to resilience. Through my eyes, you will see how I face challenges and how after all this, I still have a hunger for life which passionately drives me. We often hear the saying: where there’s life there’s hope. Well, I am the living proof!

I was fortunate to pursue various carriers, amongst which the carrier of paramedic as well as explore many other fields. All this has shaped the person I am today. It is important to understand that this blog is not a substitution for seeking medical care and that my reflections are not those of a professional. However, I can assure you that none is better suited than oneself when it comes to explaining what it’s like to live with a life-threatening illness, what it’s like to live with a kidney transplant and how to keep going forward.

It’s important for me to acknowledge the support of three people without whom this blog (derived from my podcast bearing the same name) would not have seen the day. First, there is my friend responsible for the podcast ‘s cover page. She has also listened carefully to all the episodes and proofread all the articles while providing feedback. I would like to express my sincere thanks to Caroline Patry. The second person I wish to thank for his support, his advice and for kicking me in the butt forcing me move forward and produce the podcast and the blog: my long-time friend and musician Alexandre Bonneau. The third person I wish to thank is the one who strongly suggested the creation of this blog and who also did some proofreading: André Beaulieu. I would like to thank you three, from the bottom of my heart, for all your support without which this project would be nothing.


Blog and podcast

I want to mention that you can browse through the articles in any sequence you wish since there is no order to follow. For the record, bringing this blog to life (which is derived from the podcast as mentioned previously) was not a walk in the park.

After having done most of the work to make the podcast episodes available, I revisited the texts in order to transfer them into blogs. This is almost a carbon copy of the podcast but as a text version.

I sincerely hope that my journey can one day help someone, a child or a person going through some challenging times. If such is the case, then all the hardship and suffering that I will have gone through will not have been in vain. Therefore, I humbly open myself up to you to let you discover who I am.


Hope to see you very soon!

Michel



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